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Saturday, April 30, 2011

Decompression


April wrapup... Raina is no longer a good candidate for surgery and so we have opted for radiation. In the weeks leading up to radiation treatment the oncology team wanted to get after the tumor with a third round of chemo. Fast forward a week or two and the third round is now complete... being more or less uneventful, we were discharged today. Another MRI to assess the progress is imminent.

We are working hard on getting Raina enough nutrition to maintain weight and then some. She could probably stand to put on a few pounds... a challenge with her being sick often, but the fact that we are home for awhile and dodging chemo for two months will give her a chance to get an appetite and recoup her strength.

Raina's condition permitting, we'd like to decompress this month after what seems like an eternity of high-stress decisions and inpatient care at the hospital. I for one anticipate drinking at least one beer and taking as many walks as my bony frame can tolerate during the month of May.
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6 comments:

  1. Enjoy your time together at home!
    and enjoy that beer ;) I'm sure it's much needed!
    Hope to talk to all of you soon.
    xoxo
    Liz

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  2. Glad you are all relaxing at home this weekend. Enjoy the race today -- I hope the weather is beautiful for the event. Hugs.

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  3. Jason, Thank you so much for the update. YOU SO DESERVE A BEER AND SOME!! I hope the race went well today. Your amazing family continues to be in our prayers.

    She is one heck of a baby! Such a blessing. We are all blessed to know her and be inspired by her courage. Please give our girl a BIG hug from the Kovachevich family.
    Love, Danielle

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  4. Thanks for the update!

    I can't even imagine what the last couple of months have been like- I hope that you are able to take this month and relax as a family. May is a beautiful month!

    I am glad to read that the third round of chemo is over and done with- and will be praying for successful radiation treatments.

    Your family is in our thoughts and prayers- I admire that little girl of yours- what a fighter she is!

    Erin Gaeng

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  5. Scott and JackieMay 2, 2011 at 3:18 PM

    Courtney and Jason,
    My wife Jackie and I met you near the Wall of Hope at the Race in DC Sunday. We have a picture or two of your beautiful girl. Our son Patrick is almost 16 years old, a two year survivor and co-captain of TeamBT, so we were with BethAnn Telford she asked Jackie to snap some shots of you all.

    Our very best wishes follow you to CHOP. We pray for good results and some peace for you during your time there.
    Scott and Jackie - alwines1@cox.net

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  6. So glad you all are home enjoying each other! I miss and love you all! Please give that little girl a hug and kiss from me!
    Shannon Cirella

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