Radiation at the Children's Hospital of Philadelphia wrapped up on Tuesday and we made what is hopefully our last trip North for treatment. We've spent the intervening five days enjoying the weather and comfort of home. Raina put on a few pounds in Philly, possibly due to the cheesesteaks, which makes the chemo starting at the end of the month feel a little more manageable. All in all, we are emotionally at the highest point we've been since diagnosis.
MRIs taken during radiation indicate a tiny amount of tumor shrinkage, most likely attributable to residual effect from the last round of chemo. We do not expect to start seeing results until about six weeks after the end of radiation and may see benefits out as far as nine months. Between this and the three rounds of chemo planned next, we need to see the remaining disease essentially disappear. It is unclear how likely this is, though we are doing our best to remain optimistic as we begin the next stage in this battle.
Round four of chemotherapy will begin at the end of July. The docs estimate she will wrap up the sixth and final round by the end of October. While it seems unwise to wish away time given the circumstances, we will be grateful when Raina no longer has to endure these treatments.
courtney,
ReplyDeleteso good to hear from you on the blog, and also glad to hear that raina's spirits are high with the good weather and being home. she looks great in all the photos - i wish we could get our little ones together for a playdate :) sending lots of love and giggles, and good thoughts your way... amanda (+chad+grayson)
I am glad to read that everything is going as well as can be expected- and have been enjoying the pictures of Raina most recently enjoying just being a regular little kid!!
ReplyDeleteI continue to keep your family in my thoughts and prayers!!
Erin
Thank you for an update. I am glad to hear you guys are hanging in there and staying positive. It's got to be so hard to do that...YOU TWO ARE AMAZING! And Miss Raina is a ROCK STAR! She looks so good and I love seeing her chubbiness come back. :) Keep up the great work! XOXO Love, Danielle
ReplyDeleteJason, Courtney and Raina,
ReplyDeleteSo glad your time in Philly is done and that Raina did so well while there. It is great that she has added on a few pounds as she prepares for rounds 4, 5 and 6. Going back to chemo will most certainly be difficult but as you've seen, she will rebound from the hardships and return to her happy self once the rounds are done. There is a light at the end of the tunnel.
Stable is GREAT! I have high confidence that additional shrinkage will occurr from both the radiation and the upcoming chemo rounds. Rania is kicking this tumors hiney. She is a fighter like none other! Look out ATRT, there is no place for you here in Raina's 'house'!
Enjoy the next couple of weeks and rest up for the next phase. We are glad to have you back in DC. Just knowing you are closer warms my heart.
As always, sending positive vibes and good thoughts!
~ Lauren
Thank you for the update...I've been checking frequently on this blog as reading about Raina's progress is so important. Glad to hear that things are gearing up for the next phase and that there has been continued progress (although it may seem to be minor -- it is progress!).
ReplyDeleteSending good spirits and good times your way...enjoy the few weeks of down time. Miss y'all and we continue to keep Raina in our prayers.
Hugs and kisses!
my heart & thoughts are with you ,,, always have been as I follow you all here,,,, your love for her is clear & true,,,, shes in my mind as I watch my own son grow. somehow I see her in him, or maybe its just the innocence of youth, or maybe domehow its genes,? ,,, I hope & pray for her everyday ,,,, I'm still, a better mom/person because of your experience. lots of love, Jaime in Mi :)
ReplyDeletesomehow **
ReplyDeleteStable is great! What wonderful news. Hope all is continuing to go well. Jill
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